My Breakthrough
Breakthrough Genetics Reference Group
The Genetics Reference Group have played a vital role in informing Breakthrough on a wide range of issues.
In 2002 Breakthrough Breast Cancer was invited by the National Institute for Health and Clinical Excellence (NICE) to represent women with a family history in the development of a new clinical guideline for women at risk of familial breast cancer.
In order do this, the Breakthrough Breast Cancer Genetics Reference Group was set up by inviting those with concerns about their family history to talk to us about the issues that affected them. Since then the group has grown to over 100 women.
The Genetics Reference Group have played a vital role in informing Breakthrough on a wide range of issues and in helping us to constructively focus our work in these areas.
If you are interested in the work of the Breakthrough Genetics Reference Group, or if you have any queries concerning familial breast cancer, then please contact genetics@breakthrough.org.uk or our Senior Genetics Policy Officer, Caitlin Ferguson, on 020 7025 2469.
In order do this, the Breakthrough Breast Cancer Genetics Reference Group was set up by inviting those with concerns about their family history to talk to us about the issues that affected them. Since then the group has grown to over 100 women.
The Genetics Reference Group have played a vital role in informing Breakthrough on a wide range of issues and in helping us to constructively focus our work in these areas.
Together we have:
- Influenced the National Institute for Health and Clinical Excellence (NICE) Guidelines on hereditary breast cancer published in May 2004.
- Advised the Human Genetics Commission (HGC) policy on whether genetic tests should be available over the counter.
- Provided advice to the Association for British Insurers (ABI) about whether their proposed leaflet on genetics and insurance is patient friendly.
- Advised the Genetics and Insurance Committee whether genetics tests should be used to set insurance premiums.
- Identified a need for clear, accessible, up-to-date information on hereditary breast cancer.
If you are interested in the work of the Breakthrough Genetics Reference Group, or if you have any queries concerning familial breast cancer, then please contact genetics@breakthrough.org.uk or our Senior Genetics Policy Officer, Caitlin Ferguson, on 020 7025 2469.
For further information
Dr Caitlin C Palframancaitlinp@breakthrough.org.uk
Tel: 020 70252 469
Fax: 020 7025 2401
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